Judy Jones steppin' out: Venice September 2006Mother has been gone a bit over three months now. We certainly miss her warm smile and graceful ways. I know that the phone no longer rings here several times a week at 5 AM with the sound of "How are you, Honey?" starting many of my days.
My office wall looks down as I writeFolks have been very, very kind. My own friends, most of whom Mother had known for 15, 20, 30 or more years were most solicitous and showed very real caring. They, too, considered her a good friend. More than a few wanted to fly right out to Arkansas and be there themselves to help take care of her. She elicited that type of feeling and regard. The same is true, I hear, for Dad and Janet.
I have not experienced grief in any detectable way. I think of Mother every day but always with nearly untarnished delight. No feeling of loss or sadness. Sometimes a tough of bittersweet beauty enters my soul at the thought of her...if that is an emotion. Cliche it may be, but I feel as if Mother, MizFlounce, is right here with me all the time. Not much different than when she was alive. Janet put it best: "Jeff, don't you think it is so much better now that she has died? For her and us. It was so hard there at the end when Mother was so ill, in such discomfort..."
Remembering Mother: 2 Sept 2009A woman who had a brief appearance on the most recent Bill Moyer's "Now" program said it all: "I don't mind dying...but it takes alot of getting there!". So true! A reality that will probably be one to o'er take about 90% of us if statistics hold true. So much for being hit by a meteor.
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Dad went back to Louisiana (he returns to Arkansas today until late October...maybe more?). He is doing very well. It helps that he is very active and engaged. He is surrounded by friends and is great added value to everyone so his days seem to be filled with projects and visiting and life. Good for him! He does talk about "Judy" constantly but not in a mournful, stuck in the past way. I doubt, however, that his private moments with her spirit are as relentlessly upbeat as mine tend to be. Janet's either.
.Janet's life is a bit more like my own. Back to the grindstone. I may never see the light of day again due to the build up of unfinished business, friendships/etc in disrepair, not taking care of myself physically and general egg-on-my-face that has accumulated in the nearly 2 years of my Mother's serious illnesses (first her heart then the cancer) and my frequent long absences from San Francisco to take care of her. Now I have two more friend's with ovarian cancer. As you may recall, I had another die after a 2 year battle of the same disease the month Mother's heart "blew up" in November 2007. My goal is to try and get my life back in some order despite these serious calls to arms that keep cropping up in my life.
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Janet has a demanding job as psychiatric nurse, raising one daughter at home and assisting a son in college. Ariel will be going to college in a year or so and is doing very well, as is Wolf in his final year of undergraduate but it does take effort to be there for them, I am certain. Chip, her husband, had some health scares last year but also seems to be doing well now. Janet's current added stress is going down to the farm nearly every week to help Dad clear out the buildup of 50 plus years of Mother's things, paperwork, etc. Thus, she is experiencing the "falling behind" syndrome I am now buried under as she tries to help Dad get on top of his situation.
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Nonetheless, fear not, we are doing very, very well as I trust you are. I know Mother would want you all to be having a joyous, engaged and happy life. Certainly we should with what time is given to each of us!
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But, I need to get my Butt in gear and trot off to work. First I'll make my choppers gleam and make my MaMa proud!
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Avanti!
Jeff for Judy
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PS I took some photos of the garden, which Mother loved while writing this. She would have loved to be here strolling about sipping her coffee and looking at all the spiders, flowers and random goings on of nature on this picture perfect still morning.
PPS Here is a lovely piece I just read. Apropos?
My Brain on Chemo:
Within the chemotherapy alumni corps there exists a mutual respect not unlike the bond shared by veterans of war. Sometimes that respect is silently conveyed; not everyone wants to talk about it. And sometimes it is shared in the shorthand of the battle-hardened.
Where?
Esophagus.
Who?
Sloan-Kettering.
What kind?
Cisplatin, fluorouracil, Drano,
Borax ...
Cisplatin, fluorouracil, Drano,
Borax ...
Side effects?
The usual: nausea,
The usual: nausea,
At this point the two chemo alums may begin to sense a phantom metallic taste at the back of their throat, a taste sometimes prompted by the intravenous infusion of the corrosive chemicals intended to save their lives. A strong drink might be in order; maybe two.
With that first, taste-altering sip, the two might begin to discuss another side effect that has received attention lately, the one rudely called “chemo brain”: the cognitive fogginess that some patients experience after completing their regimen. That fogginess does not always completely lift, and oncologists are now taking seriously what they might once have dismissed as a complaint rooted in advanced age or cancer fatigue.
For me, reading about chemo brain has resurrected that faint taste of metal. I underwent chemotherapy in 1999 and again in 2004, thanks to a profoundly unwelcome recurrence. Depending on one’s perspective, I was both unfortunate and fortunate. Unfortunate in that I endured all the concomitant fears and indignities, twice. Fortunate in that I had the option of chemotherapy, twice. Not all cancers respond; not everyone is so lucky.
I experienced all the typical side effects. Nausea: for several days at a time, though vomiting sometimes broke the monotony. Hair loss: I was balding anyway, so chemo saved me from comb-over delusions. Neuropathy: even now, my toes feel as if they were wrapped in cotton.
And, I now think, chemo brain — but a form that seems to be the common definition’s opposite. My self-diagnosis is that I had a pre-existing case of fogginess that lifted during and immediately after my chemotherapy regimen: I suddenly experienced acute clarity. Then, as the effects and memory of chemotherapy faded, my confusion returned. Twice.
In 1999, before the diagnosis of cancer and the prognosis of let’s hope for the best, I was enveloped in the haze of the everyday. Rather than rejoicing in a loving wife, a daughter not yet 2, a job I enjoyed — in being, simply, 41 — I created felonies out of matters not worth a summons. Traffic jams. Work conflicts. No Vienna Fingers in the cupboard. Felonies all.
Cancer, as is often said, tends to focus the mind. But my diagnosis hovered in the theoretical until the moment I began the first of six rounds of chemotherapy, each one requiring a five-day hospital stay. The nurse hung bags of clear, innocent-looking liquid from an IV pole, found a plump vein along my right arm — and the fog slowly lifted.
Sickened by the mere smell of food, I suddenly saw the wonder in the most common foods: an egg, a hard-boiled egg. Imprisoned and essentially chained to an IV pole, I would stare out my hospital room window at the people below, and feel a rush of the purest envy for their routine pursuits. Imagining the summer night air blowing cool through sweat-dampened shirts, I’d think how good a $3 ice cream would taste right about now, or a $5 beer, and how nice it would be to watch a baseball game of no consequence.
Sickened by the mere smell of food, I suddenly saw the wonder in the most common foods: an egg, a hard-boiled egg. Imprisoned and essentially chained to an IV pole, I would stare out my hospital room window at the people below, and feel a rush of the purest envy for their routine pursuits. Imagining the summer night air blowing cool through sweat-dampened shirts, I’d think how good a $3 ice cream would taste right about now, or a $5 beer, and how nice it would be to watch a baseball game of no consequence.
Men acting like boys, hitting, throwing, running on grass. I used to play baseball.
In the morning, after urinating away the remnants of poisons pumped into me, I would roll my IV-pole partner back to the window and study again the people below, moving, hustling, ambling, to jobs, to appointments, to a diner, maybe, for one of the fried-egg sandwiches served countless times every morning in Manhattan.
Gradually, from midsummer to late fall, the chemotherapy transformed me into a bald guy whose pallor was offset only by the hint of terror in his eyes. But the chemo also wiped away the muddle, revealing the world in all its mundane glory. I won’t tell you that I wept at the sight of a puppy. But I did linger over my sleeping daughter to watch her tiny chest rise and fall. I did savor the complexities of a simple olive. I did notice fireflies, those dancing night sparks I had long ago stopped seeing.
After the chemotherapy, radiation and a few weeks to allow things to settle down, as my doctor put it, I was declared “clean” in February 2000. Never again, I vowed, would I take these simple things for granted. I was blind, but now I see.
After the chemotherapy, radiation and a few weeks to allow things to settle down, as my doctor put it, I was declared “clean” in February 2000. Never again, I vowed, would I take these simple things for granted. I was blind, but now I see.
The fog, of course, returned as the effects and memory of chemo faded, no matter that my wife and I were now blessed with two daughters. How I hated traffic jams. And the Vienna Fingers! Who ate the last Vienna Finger?
Then, in the late spring of 2004, probably while I was railing about something eminently unimportant, my cancer impolitely returned. Once again I felt the frigid breath of mortality at my neck. I also felt like a fool. What is the use of surviving cancer if you don’t learn from it? Are improved by it? Am I so thick that I need to receive the life-is-precious message twice?
I returned to Sloan-Kettering for more chemotherapy and more of the same side effects — including my own manifestation of chemo brain. Fog lifted, world revealed.
After the chemotherapy came major surgery, which provided the exclamation point to whatever chemo was trying to tell me. Once again I was declared clean. And this time, by God! This time!
I became a walking platitude, telling friends without a trace of irony to live every day as though it were their last. Because, man, I’ve been there. And if I weren’t so repressed I’d give you a hug.
Slowly, insidiously, the fog of the everyday has returned to enshroud me. It came in wispy strips, a little more, then a little more, wrapping me like a mummy. Just the other day, in the car with my wife and my two daughters, I began railing about being stuck in a traffic jam.
Perspective, my wife said. Perspective.
Slowly, insidiously, the fog of the everyday has returned to enshroud me. It came in wispy strips, a little more, then a little more, wrapping me like a mummy. Just the other day, in the car with my wife and my two daughters, I began railing about being stuck in a traffic jam.
Perspective, my wife said. Perspective.
I could not hear her. You see, I’m struggling with this pre-existing human condition.
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Dan Barry writes the “This Land” column in The New York Times.
